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Emil Kakkis
Founder at
ULTRAGENYX PHARMACEUTICAL INC.
Net worth: 90 M $ as of 30/06/2026
Profile
Emil D. Kakkis founded Ultragenyx Pharmaceutical, Inc. and Everylife Foundation for Rare Diseases. Dr. Kakkis occupies the position of President, Chief Executive Officer & Director at Ultragenyx Pharmaceutical, Inc. Dr. Kakkis is also on the board of Emil Kakkis & Jenny Soriano Living Trust and Odylia Therapeutics and President of Everylife Foundation for Rare Diseases. In his past career Dr. Kakkis was Chief Medical Officer & Senior Vice President for BioMarin Pharmaceutical, Inc. and Assistant Professor at Harbor-UCLA Medical Center. Dr. Kakkis received an undergraduate degree from Pomona College and a doctorate from David Geffen School of Medicine.
Known holdings in public companies
| Company | Date | Number of shares | Valuation | Valuation date |
|---|---|---|---|---|
| 16/04/2026 | 2,694,724 ( 2.74% ) | 90 M $ | 30/06/2026 |
Latest news about Emil Kakkis
Emil Kakkis active positions
| Companies | Position | Start |
|---|---|---|
| ULTRAGENYX PHARMACEUTICAL INC. | Founder | 22/04/2010 |
Emil Kakkis & Jenny Soriano Living Trust | Director/Board Member | - |
Everylife Foundation for Rare Diseases
 Everylife Foundation for Rare Diseases Miscellaneous Commercial ServicesCommercial Services Operates as non-profit organization, which dedicates to accelerating rare disease treatments | Founder | 01/03/2009 |
Odylia Therapeutics
 Odylia Therapeutics Miscellaneous Commercial ServicesCommercial Services Operates as a nonprofit biotech that develops therapies for rare diseases | Director/Board Member | 01/01/2019 |
Former positions of Emil Kakkis
| Companies | Position | End |
|---|---|---|
| BIOMARIN PHARMACEUTICAL INC. | Chief Tech/Sci/R&D Officer | 27/02/2009 |
Harbor-UCLA Medical Center
 Harbor-UCLA Medical Center Medical/Nursing ServicesHealth Services Provides medical practice, education and research services | Corporate Officer/Principal | 01/01/1998 |
Training of Emil Kakkis
Experiences
Positions held
Active
Inactive
Listed companies
Private companies
Connections
67
1st degree connections
8
1st degree companies
Male
Female
Members of the board
Executives
Linked companies
| Private companies | 8 |
|---|---|
BioMarin Pharmaceutical, Inc.
 BioMarin Pharmaceutical, Inc. BiotechnologyHealth Technology Discovers, develops and commercializes innovative pharmaceuticals for serious diseases & medical conditions | Health Technology |
Ultragenyx Pharmaceutical, Inc.
 Ultragenyx Pharmaceutical, Inc. Pharmaceuticals: MajorHealth Technology Develops and commercializes novel products for the treatment of serious rare and ultra-rare genetic diseases | Health Technology |
Pomona College
 Pomona College Other Consumer ServicesConsumer Services Functions as a College/University | Consumer Services |
David Geffen School of Medicine
 David Geffen School of Medicine Other Consumer ServicesConsumer Services Functions as a College/University | Consumer Services |
Harbor-UCLA Medical Center
Harbor-UCLA Medical Center Medical/Nursing ServicesHealth Services Provides medical practice, education and research services | Health Services |
Emil Kakkis & Jenny Soriano Living Trust | |
Everylife Foundation for Rare Diseases
Everylife Foundation for Rare Diseases Miscellaneous Commercial ServicesCommercial Services Operates as non-profit organization, which dedicates to accelerating rare disease treatments | Commercial Services |
Odylia Therapeutics
Odylia Therapeutics Miscellaneous Commercial ServicesCommercial Services Operates as a nonprofit biotech that develops therapies for rare diseases | Commercial Services |
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